Skeletal Dysplasia Clinics
Nemours Children's Hospital - Delaware Formerly Alfred I duPont Hospital for Children 1600 Rockland Road Wilmington, Delaware 19803 302-651-5916 www.Nemours.org/skeletaldysplasia
Akron Children's Hospital Regional Skeletal Dysplasia Center 215 W Bowery St Akron, Ohio 44308 Contact: Shannon Leslie-Pasternak, BSN, RN Staff Nurse 330-543-5539
University of Missouri Department of Pediatric Orthopaedics For more information or to make an appointment call 573-884-2522 or http://medicine.missouri.edu/ortho/pediatrics/ Katheryn O. and Alan C. Greenberg Center for Skeletal Dysplasias Hospital for Special Surgery 535 East 70th Street New York, NY 10021 212-774-7332 Email: [email protected] http://www.hss.edu/skeletal-dysplasias.asp Greenberg Center for Skeletal Dysplasias Johns Hopkins University Institute of Genetic Medicine 600 North Wolfe Street Blalock 1008 Baltimore, MD 21287 To schedule an appointment call 410-995-3071 Colleen Gioffreda, Program Coordinator 410-614-0977 http://www.hopkinsmedicine.org/geneticmedicine/Clinical_Resources/Skeletal_Dysplasia/index.html
Johns Hopkins All Children’s Hospital Institute for Brain Protection Sciences Skeletal Dysplasia Program 501 6th Avenue South St. Petersburg, FL. 33701 PH: 727-767-4881 Fax:727-767-3161 Skeletal Dysplasia - Johns Hopkins All Children's Hospital (hopkinsallchildrens.org)
Seattle Children's Hospital Skeletal Health and Genetics Program For more information call 206-987-2109 http://www.seattlechildrens.org/clinics-programs/orthopedics/
Cedars-Sinai Medical Center Center for Skeletal Dysplasia 444 S. San Vicente Blvd. Suite #603 Los Angeles, CA 90048 Contact: Naomi Tashman: 310-967-0668
Bone Dysplasia Clinic Indianapolis, Indiana Genetic Consultation and Counseling for Conditions Affecting Bone Growth Contact: [email protected] Ann & Robert H. Lurie Children’s Hospital of Chicago Skeletal Dysplasia Program Chicago, IL Call 312.227.6120 from 8 a.m. to 5 p.m. Monday through Friday Cincinnati Children's Hospital Connective Tissue / Skeletal Dysplasias Clinic Cincinnati, Ohio Leah Hoechstetter, genetic counselor and clinic coordinator 513-636-4351 Midwest Regional Bone Dysplasia Clinic Clinical Genetics Center University of Wisconsin-Madison 1500 Highland Ave. Madison, WI 53705 Phone: 608-262-6228 E-mail: [email protected] Children's Hospital Colorado Skeletal Dysplasia Clinic 13123 E. 16th Avenue Aurora, CO 80045 303-724-2370
Kaiser Permanente Northern California Skeletal Dysplasia Clinic Sees patients in Oakland and Roseville, California
Kaiser Permanente Genetics 3600 Broadway Oakland, CA 94611 Phone: 510-752-5101 Children's Hospital Oakland Emily Rettner, MS Genetics Dept. Children's Hospital and Research Center at Oakland 747 52nd St. Oakland, CA 94609 Phone: 510-428-3550
Phoenix Children's Hospital Skeletal Dysplasia and Bone Health Clinic 1919 E. Thomas Road Phoenix, AZ 85016 Contact: Laura Munoz - Phone: 602-933-0044, E-mail: [email protected] Website: http://phoenixchildrens.org/centers-programs/skeletal-dysplasia-bone-health
Skeletal Dysplasia Clinic for Children Children's National Medical Center 111 Michigan Avenue, NW Washington, DC 20010 Deborah Copenheaver, Administrative Office 202-884-2187.
St. Louis Children's Hospital, MO. Skeletal Dysplasia Clinic For appointments call 314.454.KIDS (5437) or 800.678.KIDS (5437) http://www.stlouischildrens.org/content/medservices/skeletaldysplasiaclinic.htm
Texas Children's Hospital/Baylor University Skeletal Dysplasia Center Houston, Texas Phone: 832-822-4298 E-mail: [email protected] http://imgen.bcm.tmc.edu/molgen/cg/clinics/sd_index.html The Osteogenesis Imperfecta Clinic at Kennedy Krieger Institute 801 North Broadway Baltimore, MD 21205 Phone: 410-923-9400 http://www.osteogenesisimperfecta.org/
Genetic Skeletal Disorders Clinic Children’s Healthcare of Atlanta Judson Hawk Clinic 5455 Meridian Mark Rd. NE, Suite 200 Atlanta, GA 30342 http://www.choa.org/Childrens-Hospital-Services/Genetics/Genetic-Conditions/Skeletal-Disorders-Clinic For questions, call 404-785-2239 Referrals can be faxed to 404-785-9111
Shriners Hospitals for Children — Portland, OR 3101SW Sam Jackson Park Rd Portland, OR 97239 PH: 503-241-5090 FAX: 503-221-3498
Other Countries:
Canada Children's Hospital & Health Centre Skeletal Dysplasia Clinic Vancouver, British Columbia, Canada
Skeletal Dysplasia Clinic at Hospital for Sick Kids Toronto, Canada
Europe European Skeletal Dysplasia Network ESDN comprises 8 partners in 6 European countries and provides an integrated research and diagnostic network for skeletal dysplasias. The objectives of ESDN are two fold: To understand what cellular, molecular and genetic factors cause bone dysplasias and to develop effective approaches for the diagnosis of bone dysplasias. Ultimately this integrated and multidisciplinary approach will promote the correct diagnosis of many skeletal dysplasias.
Contact information: Dr. Jacky Taylor, ESDN Project Administrator, c/o National Genetics Reference Laboratory (Manchester), Regional Genetics Services, St. Mary's Hospital, Hathersage Road, Manchester, M13 0JH, UK +44 (0) 161 276 3202 (Tel) +44 (0) 161 276 4058 (Fax) Email: [email protected]
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