Regional Skeletal Dysplasia Programs

Below is a list of skeletal dysplasia centers throughout the United States and additional countries. Some skeletal dysplasia programs are more comprehensive than others.   This list may not be complete; please do your own research when choosing your health providers.  Please note that LPA is proud to list our Medical Advisory Board (MAB) Members here, and we have noted affiliated MAB skeletal dysplasia centers below with an asterisk (*). 

To view this list sorted by state, click HERE.

District 1:

• Boston Children’s Hospital*
  Skeletal Health Center
  300 Longwood Avenue
  Boston, MA  02115
  Phone: 617-355-7476
  Website:  https://www.childrenshospital.org/programs/skeletal-health-center

District 2:

• Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias*
  Hospital for Special Surgery
  535 East 70th Street
  New York, NY  10021
  212-774-7332
  Website:  https://www.hss.edu/departments/pediatrics/center-for-skeletal-dysplasias

District 3:

• The Greenberg Center for Skeletal Dysplasias*
  Johns Hopkins University
  Department of Genetic Medicine
  600 North Wolfe Street
  Blalock 1008
  Baltimore, MD  21287
  Phone:  410-614-0977 (Colleen Gioffreda, Program Administrator)
  Website: https://www.hopkinsmedicine.org/genetic-medicine/patient-care/genetics-clinics/greenberg-center-skeletal-dysplasia  

• Nemours Children's Hospital – Delaware*
  Formerly Alfred I duPont Hospital for Children
  1600 Rockland Road
  Wilmington, Delaware 19803
  Phone: 302-651-5916
  Website:  https://www.nemours.org/services/skeletal-dysplasia-program.html 

• The Osteogenesis Imperfecta Clinic at Kennedy Krieger Institute
  801 North Broadway
  Baltimore, MD  21205
  Phone: 410-923-9400
  Website: http://www.osteogenesisimperfecta.org/
  
  
• Skeletal Dysplasia Clinic for Children
  Children's National Medical Center
  111 Michigan Avenue, NW 
  Washington, DC 20010 
  Phone:  202-476-2187
  Website:  https://www.childrensnational.org/get-care/departments/skeletal-dysplasia-clinic

District 4:

• Johns Hopkins All Children’s Hospital*
  Institute for Brain Protection Sciences
  Skeletal Dysplasia Program
  501 6^th Avenue South
  St. Petersburg, FL. 33701
  Phone: 727-767-4881
  Fax: 727-767-3161
  Website:  https://www.hopkinsmedicine.org/all-childrens-hospital/services/institute-brain-protection-sciences/programs-and-services/pediatric-neurosurgery/skeletal-dysplasia-clinic

District 5:

• Akron Children's Hospital
  Regional Skeletal Dysplasia Center
  215 W Bowery St
  Akron, Ohio  44308
  Phone:  330-543-8792
  Website: https://www.akronchildrens.org/departments/Skeletal-Dysplasia-Center.html?tab=tab-1 

• Cincinnati Children's Hospital
  Connective Tissue / Skeletal Dysplasias Clinic 
  3333 Burnet Avenue
  Cincinnati, Ohio  45229
  Phone:  513-636-4760
  Website:  https://www.cincinnatichildrens.org/service/s/skeletal

District 6:

• Ann & Robert H. Lurie Children’s Hospital of Chicago 
  225 E. Chicago Avenue
  Chicago, IL 60611
  Phone:  312.227.6120
  Website:  https://www.luriechildrens.org/en/specialties-conditions/skeletal-dysplasia/ 

• Midwest Regional Bone Dysplasia Clinic*
  Clinical Genetics Center
  University of Wisconsin-Madison
  1500 Highland Ave.
  Madison, WI 53705
  Phone: 608-262-6228
  Website:  https://www.uwhealth.org/conditions/skeletal-dysplasia

District 7:

• University of Missouri*
  Department of Pediatric Orthopaedics
  204 N.  Keene St.  Suite. #102
  Columbia, Missouri  65201
  Phone: 573-882-2663
  Website:  https://www.muhealth.org/conditions-treatments/pediatrics/orthopaedics/skeletal-dysplasia 

• St. Louis Children's Hospital
  Skeletal Dysplasia Clinic
  One Children’s Place
  St. Louis, MO  63110
  Phone:  314-454-5437
  Website:  https://www.stlouischildrens.org/conditions-treatments/skeletal-dysplasia-services

District 8:

• Texas Children's Hospital/Baylor University 
  Skeletal Dysplasia Center
  Houston, Texas
  Phone: 832-822-4298 
  Website:  https://www.texaschildrens.org/departments/skeletal-dysplasia-program

District 9:

• Sanford Children’s Specialty Clinic
  Skeletal Dysplasia Center
  1600 W. 22^nd Street
  Sioux Falls, SD
  Phone: 605-312-1000 
  Website:  https://www.sanfordhealth.org/medical-services/pediatrics/specialty-clinics-and-programs

District 10:

• Children's Hospital Colorado*
  Skeletal Dysplasia Clinic
  13123 E. 16th Avenue
  Aurora, CO 80045
  Phone:  770-777-6875
  Website:  https://www.childrenscolorado.org/doctors-and-departments/departments/orthopedics/programs/skeletal-dysplasia/

• Phoenix Children's Hospital 
  Skeletal Dysplasia and Bone Health Clinic
  1919 E. Thomas Road 
  Phoenix, AZ 85016
  Phone:602-933-0638
  Email:  [email protected]
  Website:  https://phoenixchildrens.org/specialties-conditions/skeletal-health-and-dysplasia-clinic

District 11:

• Seattle Children's Hospital
  Skeletal Health and Genetics Program
  4800  Sand Point Way
  Seattle, WA  98105
  Phone: 206-987-2109
  Website:  https://www.seattlechildrens.org/clinics/orthopedics/skeletal-health-program/

• Shriners Hospitals for Children — Portland, OR*
  3101SW Sam Jackson Park Rd
  Portland, OR 97239
  Phone: 503-241-5090
  Website:  https://www.shrinerschildrens.org/en/pediatric-care/skeletal-dysplasia

District 12:

• Cedars-Sinai Medical Center *
  Center for Skeletal Dysplasia 
  444 S. San Vicente Blvd. Suite #603
  Los Angeles, CA 90048
  Phone: 310-423-6665
  Website: https://www.cedars-sinai.org/programs/ortho/specialties/skeletal-dysplasia.html 

• Kaiser Permanente Northern California Skeletal Dysplasia Program*
  Sees patients in Oakland and Roseville, California
  Kaiser Permanente Genetics
  3600 Broadway
  Oakland, CA 94611
  Phone: 510-752-5101
  Website:  https://mydoctor.kaiserpermanente.org/ncal/structured-content/skeletal-dysplasia-program-2240911 

• UCLA Health*
  Skeletal Dysplasia Clinic
  403 W. Adams Blvd.
  Los Angeles, CA  90007
  Phone: 310-825-2631
  Website:  https://www.uclahealth.org/medical-services/orthopedics-and-sports-medicine/skeletal-dysplasia

District 13:

• Children’s Healthcare of Atlanta
  Genetic Skeletal Disorders Clinic
  2147 North Druid Hills Road NE
  Atlanta, GA 30329
  Phone: 404-785-5437
  Website:  https://www.choa.org/medical-services/genetics 

Other Countries:

Canada

• Children's Hospital & Health 
  Centre Skeletal Dysplasia Clinic
  938 West 28th Avenue
  Vancouver, BC
  Canada V5Z 4H4
  Phone:  604-875-2345
  Website:  https://www.bcchildrens.ca/clinics-services/orthopedics 

• Skeletal Dysplasia Clinic at Hospital for Sick Kids
  Toronto, Canada
  555 University Avenue
  Toronto, ON  M5G1X8
  Phone:  844-564-4363
  Website:  https://www.aboutkidshealth.ca/skeletal-dysplasia-an-overview

Europe 

• European Skeletal Dysplasia Network
  
  ESDN comprises 8 partners in 6 European countries and provides an integrated research and diagnostic network for skeletal dysplasias. The objectives of ESDN are two fold: To understand what cellular, molecular and genetic factors cause bone dysplasias and to develop effective approaches for the diagnosis of bone dysplasias. Ultimately this integrated and multidisciplinary approach will promote the correct diagnosis of many skeletal dysplasias.   Contact information: Dr. Jacky Taylor, ESDN Project Administrator, c/o National Genetics Reference Laboratory (Manchester), Regional Genetics Services, St. Mary's Hospital, Hathersage Road, Manchester, M13 0JH, UK +44 (0) 161 276 3202 (Tel) +44 (0) 161 276 4058 (Fax) 
  Email: [email protected]

* Designates affiliated Medical Advisory Board (MAB) skeletal dysplasia centers